Keep away from the tube

So I found out this past Friday that I am not supposed to touch Alicen's feeding tube at all, except for feeding and medication. I was instructed way back when the initial insertion took place that I was to make sure that there was ALWAYS 5mls of water in the button inside the tube. Unbeknownst to me, this is why we make so many mad dashes over to the ER at St. John's Hospital. Evidently when you deflate the balloon to check the amount of water and then put the water back in to the balloon it tends to over inflate sometimes because there is not way of knowing whether or not you actually withdrew all of the water. Sort of like our bodies, when we lose weight and regain and lose weight and regain and lose weight our skin tends to get a little floppy and lose this is what Alicen's little balloon does. And it isn't strong anymore. BUT luckily we have never had it totally fall all the way our because if that ever happens I am under the impression that the hole will start growing back in less than an hour. I even have a catheter at home in case her tube does fall all the way out. Anyway, we were in the ER for about 7 hours. Alicen just entertained all the nureses and the doctors, but Mommy and Daddy were not happy. I spilled a brand new can of SHASTA soda all over the floor. Serves them right for serving Shasta when all over the whole hospital they sell Diet Pepsi and we all know of my addiction to my Diet Pepsi. I mean really what's up with the Shasta stuff already. I'm just saying.

We were fashionably late yesterday for church. Actually we would have been on time but Beau just had to have his weekly Vanilla Iced Coffee. Anyway, the sermon was on loving the Lord with all you mind with all you soul with all you strength and with all your might. I hear that song almost daily on the way to work on WBGL radio. I love my drive to work, I use this time to think and to talk to my God. I usually sing along with the songs on the radio, it is a good thing that God thinks it is a joyful noise, bceause I am sure that I would scare someone. I don't sing in the shower because Derald laughs at me and it startles little girl.

Speaking of little girl, she is officially growing out of Size 6 diapers. I really can't wait until July 1 so that Kid Care will kick in because she will qualify for free diapers, mattress pads, booster absorbancy pads, and I will get the plastic gloves. I will have to order size 7 from now on. I was kinda worried because they don't sell 7 in the retail stores around her usually just up to 6 is all. Anyway, though the state because of Alicen's disabilities, she qualifies for this assistance totally free. What a blessing. There has really been some good come out of Derald getting laid off huh.

Well, I must get back to work, if that is what you call it. I must try to find something to do. Will do more in my scrapbook room tonight, I even have Derald interested in what I am doing back there. He is always asking if there is something I need moved or hung up or something like that. He is soo good to me I definatly do not deserve him at tal.

More later, Christina

67 inches long

So I called home this morning to see how little britches was doing and Daddy told me that she is acting like she was 67 inches long. She sure is changing. Totally makes my ife complete. I love it when I come home at night and she smiles this great big smile. I great big heart my sweety.

tonight is Bunco at Nancy's. I really hope I will win something. It is always fun to get together with family and friends.

this weekend Derald and Roger are going racing so it will just be me and little girl. It has been a while since I had her all to myself. I think we may do some crafting, just me and her. She may get to try come finger painting at home. She has done it at school but never at home.

My mom is doing really well. She is getting more active each day. I remember 2 Sundays ago, she called me crying that she could not get up out of her chair. When I left her house the night before I locked the door behind me and I didn't have a key to get into the house so she had to call Uncle Jim and hehad to come over and get her up. If she sits too long in one position her muscles really hurt. But it is getting easier on her. Heck this past Sunday she got ready all by herself and even drove herself to church on her own. Go Mom.

Have a great night. Wish me luck tonight at Bunco.

Turkeys momma

she laughs when they all laugh

Well, we survived the wedding. We were so proud of Alicen. She did let out a big hoop and a hollar but would you believe it was exactly when the preacher said something funny. My llittle angel is simply amazing. After the wedding we went to Wal-Mart and stocked up on some things she jabbered the whole time we were in there. Like I said amazing.

Have a great day....

Turkey's mama

A weekend and a wedding

Well folks, it is finally Friday. Alicen will attend her first wedding tomorrow. Derald's friend Roger and Rachelle are getting married. I hope the music isn't too loud because we all know what loud music does to our little turkey toes.

Alicen finally got her replacement piece for her wheel chair. It is called a 4 point harness. I ordered this piece about 2 months ago but with all the confusion with our insurance ending and all that it took longer but they delivered it today. So now I an rest assured that she is totally safe riding in the van.

Our slack time at work is over. The school supply program starts this coming Monday. Although this is my favorite program I am sorta getting used to this slow time.

Have a great weekend and I will be back Monday.

Pictures

I don't know how to upload pictures on here so please bear with me until I learn how. Maybe I can get Deb to help me sometime.....

Birt Day Dirl

Happy Birthday to my little angel baby. I am so 100% proud of Alicen. She has overcome so many things in her life and they all make her even more special. We really don't have anything special planned because it is a week day. Daddy is going to take her to the park if it doesn't get too hot today. The park in Sullivan has a swing specifically for children who are disabled and can't use the regular swings. Have fun little girl, Mommy loves you so so so much.

half but not all.........

Well, we finally did it. Alicen is receiving Social Security. Well, she will receive it after all the red tape and all that. We had the appointment Friday morning. It is funny that we have to prove her disability when a person can just look at her and see that she is disabled. They are going back to July 2004 for when her diability started. Praise God. He definately is awesome.

Turkey's mom.

medical card and SS

Well here we are agin. I am in the process of filling out the mountains and mountains that are required to get Alicen the medical Card and to apply for Social Security. We have an appointment this Friday at 9 in the morning in Decatur. Please pray that all goes well.

Christina