Keep away from the tube

So I found out this past Friday that I am not supposed to touch Alicen's feeding tube at all, except for feeding and medication. I was instructed way back when the initial insertion took place that I was to make sure that there was ALWAYS 5mls of water in the button inside the tube. Unbeknownst to me, this is why we make so many mad dashes over to the ER at St. John's Hospital. Evidently when you deflate the balloon to check the amount of water and then put the water back in to the balloon it tends to over inflate sometimes because there is not way of knowing whether or not you actually withdrew all of the water. Sort of like our bodies, when we lose weight and regain and lose weight and regain and lose weight our skin tends to get a little floppy and lose this is what Alicen's little balloon does. And it isn't strong anymore. BUT luckily we have never had it totally fall all the way our because if that ever happens I am under the impression that the hole will start growing back in less than an hour. I even have a catheter at home in case her tube does fall all the way out. Anyway, we were in the ER for about 7 hours. Alicen just entertained all the nureses and the doctors, but Mommy and Daddy were not happy. I spilled a brand new can of SHASTA soda all over the floor. Serves them right for serving Shasta when all over the whole hospital they sell Diet Pepsi and we all know of my addiction to my Diet Pepsi. I mean really what's up with the Shasta stuff already. I'm just saying.

We were fashionably late yesterday for church. Actually we would have been on time but Beau just had to have his weekly Vanilla Iced Coffee. Anyway, the sermon was on loving the Lord with all you mind with all you soul with all you strength and with all your might. I hear that song almost daily on the way to work on WBGL radio. I love my drive to work, I use this time to think and to talk to my God. I usually sing along with the songs on the radio, it is a good thing that God thinks it is a joyful noise, bceause I am sure that I would scare someone. I don't sing in the shower because Derald laughs at me and it startles little girl.

Speaking of little girl, she is officially growing out of Size 6 diapers. I really can't wait until July 1 so that Kid Care will kick in because she will qualify for free diapers, mattress pads, booster absorbancy pads, and I will get the plastic gloves. I will have to order size 7 from now on. I was kinda worried because they don't sell 7 in the retail stores around her usually just up to 6 is all. Anyway, though the state because of Alicen's disabilities, she qualifies for this assistance totally free. What a blessing. There has really been some good come out of Derald getting laid off huh.

Well, I must get back to work, if that is what you call it. I must try to find something to do. Will do more in my scrapbook room tonight, I even have Derald interested in what I am doing back there. He is always asking if there is something I need moved or hung up or something like that. He is soo good to me I definatly do not deserve him at tal.

More later, Christina